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| Naji, M. |
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| Motta, Antonella |
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| Aletan, Dirar |
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| Mohamed, Tarek |
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| Ertürk, Emre |
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| Taccardi, Nicola |
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| Kononenko, Denys |
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| Petrov, R. H. | Madrid |
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| Alshaaer, Mazen | Brussels |
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| Bih, L. |
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| Casati, R. |
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| Muller, Hermance |
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| Kočí, Jan | Prague |
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| Šuljagić, Marija |
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| Kalteremidou, Kalliopi-Artemi | Brussels |
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| Azam, Siraj |
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| Ospanova, Alyiya |
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| Blanpain, Bart |
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| Ali, M. A. |
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| Popa, V. |
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| Rančić, M. |
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| Ollier, Nadège |
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| Azevedo, Nuno Monteiro |
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| Landes, Michael |
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| Rignanese, Gian-Marco |
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Melle, Ingrid
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document
“Why shouldn’t I expect a lot from life?” – a qualitative study of what facilitates long-term recovery in first-episode psychosis
Abstract
<title>Abstract</title><p><bold>Background: </bold>Qualitative research frequently <italic>characterises </italic>recovery, but<bold> </bold>more knowledge on subjective experiences of <italic>facilitators</italic> of <italic>long-term</italic>recovery in psychosis is needed. This interview study aimed to explore what people with first-episode psychosis (FEP) highlight as important for their long-term recovery. <bold>Methods: </bold>Interviews with 20 individuals in recovery (personal and/or clinical) participating in two follow-up studies, 10 and 20-years after treatment start for a first episode<bold> </bold>schizophrenia or bipolar spectrum disorder. Interviews were thematically analysed by the research team that included a peer researcher. <bold>Results: </bold>The analysis generated that personal agency was experienced as the overarching facilitator of recovery, with five themes: 1. <italic>Doing recovery in everyday life,</italic> involving agency in daily life; 2. <italic>Re-evaluating risk</italic>, involving re-evaluating limitations and stress reduction; 3. <italic>Becoming a caregiver</italic>, involving development from being cared for to taking care of others; 4. <italic>Negotiating normality, </italic>involving identity and social inclusion; 5. <italic>Owning and sharing your story</italic>, involving accepting lived experience and overcoming stigma. <bold>Discussion: </bold>All participants described themselves as the main facilitators of their own recovery, and treatment as secondary to their efforts. Gradually testing limitations and taking risks, <italic>providing </italic>social support to others, as well as owning and sharing your story were crucial for promoting long-term recovery in FEP. Clinical implications include supporting service users’ agency with strength- based interventions and shared-decision making, and refining stress reduction psychoeducation in a long-term perspective.</p>